What you’re saying: Survey Suggestions for AIDS 2012 Sessions

| October 5, 2011 | 3 Comments
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Last month, Countdown asked readers for suggestions on critical topics, speakers, and issues that ought to be added to the AIDS 2012 program.  Here’s what you said and here’s what will be shared with conference planning committees:

Please share ideas of important topics, trends, debates, issues, or activities that you would like to see highlighted at AIDS 2012.

1 1. Strategies for “country ownership:” what does it mean in practice, and are there examples of success? How do we transition HIV programs into local ownership when MARPs are often the most marginalized and often criminalized groups? and 2. How does the criminalization of HIV and MARPs within legal systems impact our prevention efforts?
2 Poverty level ” Is or are they going to bring it down which it will impact over 120 in our area , but in others County 3000. 2.Our porject.grass root
3 1. Investing in Local Civil Society to Drive Accountability (or Lessons Learned from Civil Society Engagement in the Global Fund) 2. Meeting the MDGs Together: Integrated MCH, FP/RH and HIV/AIDS 3. Where’s the Leadership on Prong 2 of PMTCT? 4. Implementation Advocacy: How Can We Ensure That Good Policy Translates Into Good Programs 5. Youth Leading the Way on SRH-HIV Integration
4 How in the world can they cut the most successful programs without first knowing what worked? When the rate of new cases declines for 6 years, for example, how has that effected the undercount ratio? Are “new cases” longer in the virus (as past epidemics for other diseases were), or are there fewer or more undercounted cases? What has been the relative impact of rapid HAART (and declining infectivity)? of PEP? of rapid testing? of insurance guarantees? of PrEP? of targeted outreach? To which groups? With what kind of sustained (long term) impacts?
5 The lack of funding for CBOs to stay functioning to employ and/or have members that dose Education and Outreach in the highly infected communities and how these funds can be replaced. Outreach is a powerful and effected tool in Educating, Prevention and Testing.
6 Thirty years into the AIDS epidemic, it is clear that Indigenous peoples around the world are vulnerable to HIV infection. Recently published data show that indigenous people have been disproportionately affected by HIV (Shea et al, (2011) HIV diagnoses in indigenous peoples: comparison of Australia, Canada and New Zealand, Health International, 3 (3): 139-218.).To date, HIV among indigenous populations has been given scant attention at international AIDS conferences. It is timely for the International AIDS Society to address this issue at the international level by including indigenous issues as a plenary presentation.
7 TB-HIV co-infection
8 TB-HIV co-infection in vulnerable populations, including migrant workers, prisoners, sex workers, health care workers and drug users. Also would be great to have a session on TB-HIV in children, an issue that is very neglected.
9 PLWHA launch , and global village
10 Women and HIV Women in HIV Research Reproductive Health and Rights for women living with HIV Intersections of gender based violence and HIV *This represents a summary of topics and makes the assumption that you are familiar. Please contact me if you would like greater detail on these topics*
11 Internation programs involving nueses and patient in Africa. Especially Ethiopia, Kenya, eastern African countries More work shops, more consumers and highlight prograsms who have active consumer driven programs.
12 a session on global (both domestic & international) resource flows from the private & public sectors. We would also like to see an increased presence of, and sessions on the important role of, private philanthropy engaged in HIV/AIDS funding
13 Research towards a functional cure (see sessions/presentations around this at AIDS 2011 conference) Nutritional supplementation research and role of certain supplements in addressing HIV
14 Increasing access to sexual and reproductive health information and services for adolescent girls Promoting LGBTI rights and increasing access to health services by reducing stigma and discrimination
15 Meaningful participation and leadership development for people living with HIV & AIDS and for those who represent the epidemic in their communities. Ending HIV & AIDS criminalization, stigmatization, and discrimination. Building sustainable policy, funding, and resource bridges to fix broken structural interventions (ADAP, AIDS housing, etc.) that fuel HIV and health disparities.
16 participation of community in developing research, commitment to social justice issues by researchers, ancillary care issues in limited resource settings
17 Faith-based prevention programs
18 I would support shadow communities campaigns that focus on cities, comminities and/or cultures that are highly impacted but constantly lagging in services or emphasis due to their lesser physical numbers or due to the power dynamics of a given area.

Please suggest important activists, scientists, HIV service practitioners, and officials whom you believe ought to be invited to present or speak at AIDS 2012. Please including the topic or issue you would expect them to illuminate.

1 Annie Lenox. Elten John, -( Adovacy) Dr. Hoe. Diamond Reaserch. CDC rep..Future of HIV/AIDS and case managing with the deveopment of new grass root porgrams “How can we help”
2 PLWHA leaders from around the world
3 Long Term Survivors/Consumers
4 Dr Clive Aspin – Indigenous People and HIV/AIDS.
Ambassador Mark Dybul on the deadly impact of TB-HIV co-infection.
6 Dr. Anneke Hesseling, Desmond Tutu TB Centre, South Africa (TB-HIV in children) Dr. Jeffrey Starke, Texas Children’s Hospital, United States (TB-HIV in children) Dr. Stephen Graham, Paediatrics Royal Children’s Hospital, Australia (TB-HIV in children) Dr. Max O’Donnell, Albert Einstein College of Medicine, New York, United States (TB in vulnerable populations)
7 Walk, Candle vigil,
8 Dr Maurice Policar MD, New York city Attending. Topics include HIV counseling and testing expansion at a new york city public hospital and its success, looking toward the op-out program
9 Bernhard Schwardlander, UNAIDS (Investment Framework); Jen Kates (Kaiser, general resource flows, policy); John Barnes, FCAA (private philanthropy); Jirair Ratevosian, Senior Legislative Assistant, Barbara Lee (funding, policy, the role of social media in the response). Moises Agosto (NMAC) – looking at the role of community in implementing treatment and prevention.
10 David Miller, long time well-known AIDS treatment activist in NYC Guido Silvestri, MD, researcher at Emory who has done, and continues to do, groundbreaking cure research Pastor Rick Warren, Saddleback Church in CA, who is committed to fulfilling the critical role churches and the faith-based community need to fulfill to address the AIDS crisis; I have a personal relationship with Pastor Warren and he is NOT homophobic- he just won’t marry two people of the same sex. He is also one of the most influential people in the world.
11 Outreach for participation of adolescent girls
12 members of DAIDS network community committees for community research Martha Tholanah (Zimbabwe) on social justice issues, Henry S Richardson (Georgetown) on Ancillary care issues
13 Art Ammon/Amfar. To discuss the work of the Christian churches in volunteer health care missions to Africa such as Save Africa and the HOPE WALKS foundation.

A successful conference must advance learning about (please complete the sentence):

1 sustainable and effective HIV prevention strategies
2 /where we have been, where we are now. and the future of HIV/AIDS. How grass root programs that are in treches within our community in the develop Leadership ie..Peer to Peer
3 creating political will – including policy and funding – for a comprehensive response to HIV/AIDS that includes sexual and reproductive health and reflects the needs and rights of individuals.
4 Ending the epidemic and capitalizing the value of prevention! With the average case between costing $300,000 to $500,000 in medical care alone from diagnosis to death, sharp declines should free cash to accelerate even sharper declines, and not be penalized. Prevention saves, but cutting prevention costs.
5 Long Term Survivors their life and struggles. An untold story(s) that should be told and respected.
6 Marginalised cultures and countries living with HIV.
7 the leading killer of people living with HIV … tuberculosis!
8 Peer disussion groups and e list serve
9 the changing epidemic and emerging populations with the effective interventions that support all.
10 New advances on the horizon.
11 how we push through the current “Cross-Roads” (perfect storm, whatever metaphor) we find ourselves at? How can grantmakers/donors fund the implementation/realization of new, ground-breaking data? How does the community roll it out? How do we become more efficient and strategic in all of this?
12 Advances in therapeutic vaccine/ IBT research How HIV policy/funding decisions are truly made and who the ultimate decision makers are in the U.S. decision
13 Community and civil society participation as a critical process by which to fight the epidemic, particularly focused on marginalized groups.
14 overall care and rights of the individual, not just medical
15 The need to be inclusive of populations whose sexual and cultural activities occur outside and across the usually preceived racial and economic boundaries.

 

 

 

Category: Uncategorized

  • http://www.allen-temple.org Gloria Crowell

    Need to include input and voices from the Faith Community throughout the country that can share models of success for implementing HIV Education and Prevention strategies in local, city-wide, and regional settings.

  • Kun POCH

    Dear AIDS-2012 Co-Committees,

    I would like to share my ideas and wisdom for International AIDS2012 Conference, Washinton DC, As all of you known the HIV-Related Stigma and Discrimination is still obstacle of PLHIV to be accessibility of HIV and AIDS Healthcare around the community! If i have an opportunity to get a scholarship from AIDS-2012 Conference, I will be contributing all of issues in my community to people around the world to be know about the HIV-Related Stigma and Discrimination!
    Thanks and best wishes with across,

    HIV+ Cambodia

  • http://www.socialworkers.org Evelyn Tomaszewski

    Building awareness and skill and programs that integrate psycho-social / mental health care and treatment, including behavioral health and substance use, in the necessary broad spectrum of services and programming needed by persons iving with and affected by HIV/AIDS.

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